Providing support for those with Ehlers Danlos & its comorbidities in the Western MD and Eastern WV panhandle. Our mission is to offer comprehensive physical and mental resources and to address any day-to-day question...
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Our nonprofit was born out of personal experience and a profound understanding of the challenges faced by individuals with chronic, often invisible illnesses such as Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS). These conditions can be debilitating, isolating, and misunderstood. Recognizing the gaps in resources, financial support, and comprehensive care available to people affected by these illnesses, we saw a need for an organization that could bridge these divides and provide the support that is often missing.
The idea began with a few simple but powerful goals: to build a community, provide reliable resources, and educate both patients and healthcare providers. As we shared our vision with others, it quickly became evident that there was a strong demand for a supportive network specifically tailored to these conditions.
From the beginning, we have been guided by a mission to empower individuals facing chronic illness with resources, financial support, and a sense of belonging. With the dedication of our founders and the backing of early supporters, we began the groundwork for establishing an official nonprofit structure to bring these goals to life. While we are in the early stages of our journey, we are focused on building a foundation that will allow us to serve our community effectively for years to come.
Our journey is just beginning but our commitment is unwavering. We look forward to growing alongside our community, increasing our reach, and making a meaningful impact in the lives of those who need it most
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