Gavin's Medical Expenses

Week 7: I would like to include everyone in the latest update. Gavin has handled his chemotherapy surprisingly well. He has done 6 chemo treatments, he is finally off his steroids, as of this week too. He continues to take several other meds but so far he is tolerating them well. The past two weeks have been our most challenging of the 7 weeks. He doesn't sleep very well during the day and the nights are very tiring and restless. We are hopeful this only lasts a short while. Gavin has been coughing a great deal with his continued shortness of breath, but it sure doesn't slow him down!

Friday, January 3rd is a big day for us. We have our chemotherapy, but more importantly Gavin has his repeat PET scan and MRI. These two tests will give the doctors an indication if his tumor (JXG) is still active and/or growing. We are told to not be surprised if its not smaller, but we mostly want it to stop growing. I have to remember its only been 7 weeks... But praying for good news.

Thank you for the continued love and support you've all shown to our family. May God bless you all in the new year! Gavin STRONG!

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Some of you have asked what Gavin has been diagnosed with, its called Systemic JXG, which is affecting his lungs. A helpful website is www.jxgonlinesupport.org

UPDATE: Day 1 of Chemotherapy is under our belts. It was a very long, tiring, and emotionally draining day, by far one of the hardest days I've had. Gavin had the surgery to have his port placed and had a round of chemo, which absolutely wore him o...ut. He is sore and exhausted but we are hoping for no high fevers or vomiting. He will begin his steriods and other meds tomorrow, along with medicine to prevent nausea.